Muscular Dystrophy Association

1020 W. 31st St., #310
Downers Grove, IL 60515
630-960-1500
630-960-1551 Fax
www.mda.org

Mission
MDA is a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.

Facts and Statistics
More than one million Americans are affected by neuromuscular diseases.

Jerry Lewis serves as MDA?s national chairman and has been the Association?s number one volunteer for more than 50 years.

Health Info
There is no single disease called muscular dystrophy. The term designates a group of hereditary muscle-destroying disorders, which vary in inheritance pattern, age of onset, initial muscles attacked and rate of progression.

Fundraising & Administrative Percentage
22.9%

Testimonials
There are two ways you can marginalize people with disabilities,? says Christopher Rosa, a member of MDA?s Board of Directors.

?One way is to exclude and stigmatize them. The other is to set them apart by putting them on a pedestal and establishing them as paragons of virtue, tenacity and courage. Both of these approaches end up distancing people with disabilities from others.?

It?s Chris Rosa?s mission to be a bridge between those groups.

As a 37-year-old man with Becker muscular dystrophy (BMD), a full-time wheelchair user and a director for student affairs for the City University of New York?s 9,000 students with disabilities, Rosa, of Flushing, N.Y., strives every day to show that people with disabilities are just people.

He accomplishes this through a variety of means, both professional and personal. He works with kids, sometimes coaching, sometimes mentoring. He facilitates accessible education for students with disabilities.

He goes crazy for the Mets and rocker Bruce Springsteen. He serves on high-level governmental committees regarding disability issues. He goes to Jersey Shore rock ?n? roll clubs.

He is himself.

 

 

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